It’s crazy, but sometimes I feel like a criminal constantly judged by people who do not know anything about me or my life and before this world it’s best to pretend If you do not know me well enough or are part of my family,
it’s possible that Sometimes you’ve come to think I’m pretending to be sick. Maybe you think that you can not be continually tired or that it is impossible for someone to live with constant pain and hopefully it was like that and I, like many other people, did not experience it in the first person pretending to be well for our family and acquaintances, pretending to be well go to work every day even a brutal torture and we can only half meet our obligations swollen pills and painkillers, crawling with harsh penalties for when we finally come home can not move or the intense and insufferable pain and exhausting exhaustion of the that we never recover. But in spite of everything I have no choice but to act as if I was well.
It’s much easier to pretend and try to make me see that I’m fine because that way I do not have to defend myself. I do not have to explain to someone that living in constant and constant pain is possible. Nor do I have to return to enumerate symptoms to someone who does not feel any interest. I do not have to justify unrelenting fatigue. I do not have to explain why I do not go to the gym or the pool as before. I’d like to be fine, but I’m not.
I do not understand very well why I feel that I have to pretend to be fine when it’s the opposite. Why does the opinion of others matter so much? Why do not I care what they think? I am tired, very tired of trying to explain how I really am, I have explained it to family and friends who have not understood my daily reality, I have even told doctors who have looked at me with disbelief and they have told me that what I tell It is not possible, that I exacerbate the symptoms. A few yes, thank God but not the majority and maybe that is why I have developed great skills as an actor in a role I never asked to touch me.
It’s crazy, but sometimes I feel like a criminal continually judged by people who know nothing about me or my life and before this world it’s best to pretend that people who barely know you or know anything about you do not start to give you advice on what you should do without having the slightest idea or believe you know better than me how I am and what affects me or not.
Even if it costs me, I always try to be kind when someone asks me how I am doing. That is a question that sometimes almost makes me burst out in anger because I can not tell the truth, but I hold back and try to divert the topic or try to settle it with a short “I’m fine”. I could say “today I managed to get out of bed without help” or “I have been doing something better for a few days in which the pain is giving me a break” or “this week is being a hell because I’m going through a crisis”, but this would lead to have to justify my state again, to have to give explanations of why I am like that who surely will not believe me, so the answer is never the truth.
I would like to stop pretending that I feel good and be able to show my true state, I would like those who ask me to do so with a real interest in my state and not always see or hear how others suspect that I am lying when I tell them which one It is my real state.
reference:FIBROMYALGIA: I’m not pretending to be sick, I actually pretend to be well