Fibromyalgia, a slow death: a disease that can take up to 10 years to be diagnosed

Fibromyalgia is not seen, suffers. Fibromyalgia is invisible, but the millions of people who suffer from it are not.

Why Fibromyalgia Became a Health Problem

Although institutions continue to look elsewhere, fibromyalgia is a reality that continues to grow, which does not include social class, cultural level, age or cardinal point. It may start in childhood and worsen over the years, with the onset of new symptoms.

Far from being psychological, as many have led us to believe, more recent research suggests that the world is a neuroimmune disease and puts all systems of the body at risk in this way, and may appear in more than thirty different symptoms. The most disabling are chronic pain and fatigue.

“Fibromyalgia is a chronic and debilitating disease of unknown cause and without effective treatment.”

For many years he avoided this definition and preferred to blame the liar, complainant, neurotic, depressive, traitor, victimizer … to the point that most of society believes that fibromyalgia is synonymous with “storyteller” and all forums are spoken with contempt and distrust. patients.

The people in question are exposed to a “popular trial” with a verdict: “life imprisonment”, doomed to be locked in their homes, not preparing, not smiling … because if they do, they will be redesigned. “It will not be so bad when everything is settled,” “it seems she laughs, it will not be so bad …”

In addition to being sick, society questions its right to live and be happy. People with physical difficulties who are successful on a sporting or personal level are examples to follow and inspire admiration, and no one doubts their disability. This admiration and empathy are evident in all illnesses, except in fibromyalgia.

The patient with fibromyalgia who is able to be happy, despite the disease, and succeeds in spite of the great difficulties, is not valued for her strength and desire to excel, nor is she an example of life, is simply a reason to put in question her diagnosis and, with it, the professionalism of the doctor who gave it.

The fact that the harsh reality of this harsh illness has been denied for so long has caused irreparable physical and moral damage to many people affected.

treatment
In terms of health, polypharmacy was abused and drug addicts were created and the fact that their environment and society were “nothing” led to family collapses, harassment, dismissals and unfavorable sentences. inability to work.

When, because of all these collateral damage, the patient is submerged by depression, those who remain obsessed with rejection of evidence are confirmed by the fact that “their problem is psychological.”

Years ago, we could justify this “inadequate treatment” due to ignorance of the origin of the disease, but after thirty years it does not work anymore. Even if we do not yet know the source, even if there is still no measurable indicator, it is time to take responsibility and start looking for it.

Because fibromyalgia has gone from a health problem to a social problem. Affects 5.4% of the population, 92.7% are women at risk of social exclusion.

“Fibromyalgia is a chronic and debilitating disease of unknown cause and without effective treatment.” This is a direct and easy to understand phrase, it is time to accept, take responsibility and act appropriately, for example by investing in research and resources for treatment the disease.

Fibromyalgia is not just a pain, as some say, as if it were not much. It affects the whole organism so that the patient moves from specialization to medical specialization for years until finally getting a diagnosis that does not help much because the prescribed medication does not make the pain disappear.

The result is an extraordinary expense for the health system and wasted time with the patient, which increases the symptoms of the side effects of polypharmacy and frustration. The frustration is also shared by doctors who want to help the patient but feel powerless due to lack of time in consultations and resources to serve them in a multidisciplinary way, as they deserve.

The solution is to have the political will to invest in research and training of medical specialists who manage these units. This form of care would be less costly for the system and would improve the patient’s quality of life and thus the family and professional environment. Perhaps one of the reasons why this is not studied is because “fibromyalgia does not die …”

Leave a Reply

Your email address will not be published. Required fields are marked *

Close
error: Content is protected !!